I am 35 years old and mother to a beautiful and precious 3 year old little girl.
I was diagnosed with (SLE) Lupus at the age of 19. At the age of 21 I spent 5 months in the hospital due to complications of my Lupus. I spent the remainder of my twenties having late night emergency room visits and extended hospital stays.
Surprisingly at the age of 32 I found out I was pregnant. I was deemed high risk and would have weekly appointments to keep track of the health of my daughter and I. At a 30 week appointment/ evaluation I learned that my kidneys were failing. I was rushed to labor and delivery, there I gave birth to my 2lb, 9oz. baby girl via c-section. She was taken to the NICU and I to Buffalo General to start Dialysis.
My Nephrologist decided not to begin dialysis to give me a chance to try to recover. Within the next couple months my health began to decline with multiple hospitalizations. I started dialysis in November of 2014.
My daughter was 6 months. My daughter has grown up knowing that mommy goes to Dialysis and sometimes the “hos-si-bo”.
My wish is to receive a transplant someday soon. I don’t want this to be a memory for my daughter.